|photo credit: pixabay.com|
|photo credit: pixabay.com|
Oh, the riches in that passage! And God was clearly speaking to me!
|Photo Credit, David Niblack, Imagebase.net|
|Photo by Gualberto107. Published on 19 May 2013|
Why is my life so hard that I may have thought the thoughts that I listed above?Because my daughter has special needs and there is a TREMENDOUS amount of stress placed on the parents of a child with special needs. Not only is my daughter's disease RARE, which means we have to help educate and advocate throughout the medical community, but, in regards to her education, we have to be exceptional advocates for her as well!
But, Tammie, what kind of pressure is placed on you just because your daughter has special needs? Isn't it possibly even EASIER because expectations for her future education may be lower?I just recently read a blog post (or two or three) about how to best prepare for your child's IEP (Individualized Education Plan). Here are some of the things the authors suggested one SHOULD DO in order to be successful (all of these are in my paraphrase so are not word for word what the original authors wrote):
Forgive yourself and don't feel guilty about how you may not have done a "good enough" job???
Forgive yourself because you don't have enough time in each day to read every blog, every research article, every letter to the editor about special education and your child's needs???
Forgive yourself because you have a JOB, and a FAMILY, and a GOD who also deserve your attention???
So, what do we do, Tammie? How do we still do a good job parenting our child and advocating for her or him while also not losing sight of God?We look to God and do what He would want us to do.
It is HUMANLY IMPOSSIBLE to succeed at this special needs parenting journey WITHOUT the supernatural power of the Creator. He has a specific purpose for us, for our children and for the heartache, blood, sweat and tears that go into our lives.We can only succeed when we fall to our knees and look to the one who has written these stories long before we were even formed.
I had always dreaded the day she realized just how different she was from everyone else -- that Down Syndrome set her apart and made learning more difficult.
"I NOT WANT DOWNS SYNDROME ANYMORE!!!
I want to be like everybody else. I want talk fast and not need help."
"He will only go to special needs events if he is the counselor. You see, according to Jacob, he 'used to have Down Syndrome when he was little.' He's outgrown it and I love him for that. He works at a local private school, and he lists his job title as 'Assistant Director' on his Facebook page. And you and I know that he is such a valued asset to the team, next year he might be promoted to Director."