Wednesday, August 31, 2016

In Christ's Name

Copyright: deanpictures / 123RF Stock Photo
I was allowing my mind to wander last week after I gave a routine prayer over breakfast--simply, "Thank you for the food, thank you for another day," or some other statement I regularly list off as I pray over my meals. As I ended the prayer and began to eat, I thought to God how peculiar it seemed that I always ended such short prayers with "In Your name I pray." Had I never contemplated that statement before?

I began to turn that phrase over and over again in my mind, feeling a significance from those words which I'd never felt before. The words reminded me of the Medieval Period, where armies would charge forth in the name of their kingdom, knowing that death is on the horizon; where messengers would relay foreboding decrees to their rival kingdom, declaring separation or war in the name of their ruler. The statement also evoked the memory of a modern army, declaring victory or accepting defeat in the name of the country for which they tirelessly fight.

Many such examples bounced about my mind as I mulled over these simple words, and these examples all held something significant in common: Each instance of acting in someone's name implied that the person taking action is fighting for a side which they claim to be true and righteous; They implied that the person is confident and proud of the name they are fighting for, assured of victory and the safe-keeping of themselves and others; They implied that the person is willing to put themselves in peril or look into the eyes of death, yet remain sworn to their mission for the honor of the name for whom they stand.

Thinking on these examples of selflessness and valor for the sake of an awesome and powerful name, it puzzled me further how I could possibly finish my prayers in God's name without feeling some sense of wonder, power, or distinct purpose for myself. When we all pray, endure pain and sorrow, live and breathe, we should all be feeling a sense of purpose or pride in doing these things in God's name. God has charged us to go about life in the way that a soldier may, representing a name of justice, power, and righteousness. As such, in all that we think, say, and do, even in the midst of suffering, we can be confident knowing that we stand for a powerful name Who will right wrongs and stand beside us, His army. 2 Timothy 2 represents this idea well:  

"Endure suffering along with me, as a good soldier of Christ Jesus... Always remember that Jesus Christ, a descendant of King David, was raised from the dead. This is the Good News I preach. And because I preach this Good News, I am suffering and have been chained like a criminal. But the word of God cannot be chained. So I am willing to endure anything if it will bring salvation and eternal glory in Christ Jesus to those God has chosen." (2 Timothy 2:3, 8-10 NLT)

2 Corinthians 5:20 also teaches that we are not just soldiers, but representatives and ambassadors of God's will: When we exist "In Christ's name," we exist as His messengers, His agents of His redemptive love. When we choose to do all things in His name, we are choosing to be part of a proud army of many, willing to give our lives and comfort over for the cause of the name of Whom we serve. This gives our pain, our mundane, our joy, and even our prayers so much more meaning than simply going through the motions of routine. Living fully in Christ's name means living a life of trust and bravery in Him.

Pray: Lord, in every thing that I think, say, and do, in every season and every trial, help me to remember that I am Your loyal soldier, fighting for a mission of redemption, love, and honor of Your great name. Let me remember the magnitude of who I am in You, who my family is in You, as joyful representatives of Your righteousness and grace.

~Alexandra Dittrich


Tuesday, August 30, 2016

The Need for an Advocate

"...But God shows his love for us in that while we were still sinners, Christ died for us." 
~ Romans 5:8, ESV ~

I have to be honest, I was dreading school starting back. Not because I didn't want a break after a long summer but because I remember the trouble that a certain kid continually got into last year. I was not ready for a repeated year of that continual bad news.

I have prayed about it often. I mostly got negative communication last year. I didn't get to hear about many wins. I wanted to hear and see my child being successful in some area. A realistic area. Any area. I wanted something other than the negative. I wanted a teacher who would love my child enough to help him even through his difficulties and yet-to-be-defined quirks.

This year, I think I got just that and I am thankful! This teacher has communicated clearly, daily. Even before the first day I emailed her my concerns and my child's history. She was super responsive and encouraging. Daily, she is encouraging to him. She encourages him to be the best he can be, and so far, it is working.

We need advocates, teachers, friends, doctors, and family who will champion our kids with their special needs. These people reflect the glory and love of Christ. I find myself in happy tears every time I see the effort and love despite the difficultly. And that is how Christ loves us. He has an unstoppable, never-giving-up, never-forsaking-us kind of love. He even loved us before we knew to love Him. He is an amazing Savior.

When we get the privilege of having these advocates in our lives, it is a shadow of Christ. It is a glimpse of hope in this world. It helps us know we will see good not only in Heaven but in the here and now land of the living (Psalm 27:13). We have a tough gig sometimes, but the grace of a good advocate takes us farther than we thought we could go. These unspoken champions are a grace gift to us just as Jesus is the One and Only Perfect Advocate given to speak on our behalf because of what He has done. It is nice to see a glimpse of his love through others as we wait for His final return.

Prayer:
Father, help us have advocates to champion our children as we live in the difficulties of this present life. Help us see your glory in being the true Advocate. Thank you for giving us glimpses of your goodness through others. In Jesus Name. Amen.

~Ang








Enter today's drawing as we wind down celebrating Special Needs Parents Appreciation MonthToday's prize is a the book COMFORT IN THE MIDST OF CHAOS, by Barbara Dittrich.  The book has a retail value of $10.  Simply leave a comment below and also "Like" our Facebook page

Monday, August 29, 2016

Escalating Epinephrine and Misplaced Hope


Brothers and sisters, we want you to know about the ·trouble [trial; tribulation] we suffered in Asia [C a Roman province in present-day western Turkey]. We had great burdens there that were beyond our own strength, so that we even ·gave up hope of living [L despaired of life]. Truly, in our own hearts we believed we ·would die [L had been sentenced to death]. But this happened so we would not trust in ourselves but in God, who raises people from the dead.  God ·saved[rescued; delivered] us from these great dangers of death, and he will continue to ·save [rescue; deliver] us. We have put our hope in him, and he will ·save [rescue; deliver] us again. And you can [or …as you]help us with your prayers. Then many people will give thanks for us—·that God blessed [for the gift/favor given to] us because of their many prayers.
~ 2 Corinthians 1:8-11, EXB ~

By now you may have heard the latest large pharma scandal as consumers reel from Mylan's prohibitive price increase for their widely used Epi-Pen®. If you are a parent like myself, who has a child with life-threatening allergies where this medication is prescribed, it is easy to be prone to panic. From the time our children receive their first diagnosis or treatment for something that is not quite right, we caregivers are single-minded in our pursuit to keep these precious kids alive and thriving. Our hope can end up being misplaced in looking towards cures and expecting mercy from modern medicine.


As for my family, this isn't the first time we have stared this sort of pharmaceutical nightmare in the face. When our son was first born in April of 2000, there was a nationwide shortage of the life-saving blood clotting factor he desperately needed to treat his severe hemophilia. There was great concern in the bleeding disorders community about the ability to treat the disorder prophylactically, undue joint damage because of hesitancy to treat prophylactically, and the fearful thought of possibly having to return to human plasma-derived product, which evoked the not-too-distant-fear of AIDS contamination. Once we got through that season in the community, we quickly learned that the fear of product shortage was eclipsed by the heart-stopping price. Patients like our son face an annual drug cost alone beginning at $100-300,000. Those numbers are daunting, to say the least!


Yet, even with these crises, the Apostle Paul stood as an immovable example to me, as he still does now. In the first chapter of 2 Corinthians, he barely begins to scratch the surface of all the adversity and life-threatening situations he had found himself while seeking to spread the Gospel. It isn't until Chapter 11 that Paul really lays out the ugly details of what he had faced:

Five times I received from the Jews the forty lashes minus one. Three times I was beaten with rods, once I was pelted with stones,three times I was shipwrecked, I spent a night and a day in the open sea, I have been constantly on the move. I have been in danger from rivers, in danger from bandits, in danger from my fellow Jews, in danger from Gentiles; in danger in the city, in danger in the country, in danger at sea; and in danger from false believers. I have labored and toiled and have often gone without sleep; I have known hunger and thirst and have often gone without food; I have been cold and naked. Besides everything else, I face daily the pressure of my concern for all the churches. Who is weak, and I do not feel weak? Who is led into sin,and I do not inwardly burn? (2 Corinthians 11:24-29, NIV)
Still, he proclaims in the next chapter the faithfulness and power of God. And Paul didn't have modern medicine to help him through all of this! There weren't antibiotic creams to treat the scars on his back. There weren't NSAIDs to help him manage the pain. There weren't pills for his churning stomach. God even denied him healing of his "thorn in the flesh." (See 2 Corinthians 12)

We are still talking about the impact the Apostle Paul had on history today because he put his ultimate hope in God alone. He did not put his hope in treatments. A cure is not where he focused all of his energy. He knew that only God held his life in His hand, had numbered his days, and would keep him secure until He had deemed "mission accomplished" in Paul's life.


The Lord showed me early on that all of my worrying and micromanaging would do nothing to spare my children's lives. I have had no trouble recognizing that I am NOT in control. Some of the most stunning, life-threatening situations with my daughters and son have occurred either while I was standing right next to them doing nothing unusual, or at times I would have least expected. There was nothing I could have done to prevent any of those traumatic events.

While it is certainly unnerving in today's practice of medicine to have a life-saving remedy to our children's well-being suddenly threatened, I, like Paul, cannot hang my hope there. I must walk forward in faith, still pushing back against institutional injustices like price-gouging, but ever-relying on our Maker. I trust him to love us and keep us as He sees fit. 

PRAY: Jesus, You have promised that You would never leave us or forsake us. Even when some of the world's institutions on which we rely fail us, You never will. Comfort my soul with that reminder. Holy Spirit, sooth my heart when I am concerned. Bring justice to those who suffer at the hands of today's giants. Give us peace as we trust You with it all.


~ Barb Dittrich


Friday, August 26, 2016

A Mundane Sacred Moment

photo credit: pixabay.com
Jesus knew that the Father had given him authority over everything and that he had come from God and would return to God. So he got up from the table, took off his robe, wrapped a towel around his waist, and poured water into a basin. Then he began to wash the disciples’ feet, drying them with the towel he had around him.

John 13:3-5 (NIV)

The Mundane

My son has a thing for smells.  He always has.  He used to be able to tell me that important ingredients were missing from his meal by just smelling it.  He would stick his nose in people’s necks and take a deep breath. Smells are his thing.  Touch is his thing too.  His first spoken word at 4 years old was 'tickle'. He has a nightly ritual that starts with his command of ‘rub head’.  He leans on me and offers his shoulder for a squeeze. Touch is his thing.

Maybe because he doesn’t absorb his nutrients well, or maybe he’s not drinking enough water or not having enough fatty acids, but his skin is very dry.  When he got older and became more independent, and would dress himself, but would pour or drink the body lotion, the lotion applications to his person became less and less frequent.  His feet are how hard and dry.

The Moment

Have you ever had one of those moments when disconnected, floating facts came together into a powerful whole unit?  That’s what happened when I realized that I can combine the 2 things he was into, and build connection with my son. I decided to get therapeutic grade, edible essential oils and coconut oil. The beautiful aromas are known to be helpful with moods and a range of other things. I’m not sure if it helped his mood directly. But he loves to smell his oils. So I add one drop to his wrist, and ask him to smell it. I ask him to choose which two oils her wants and he does.  Then, he presents his feet. And I massage them.  Sometimes, I’m in a hurry to get through this ritual. But sometimes, I remember that this is a gift.  I put myself at the center of two favorite things and created an interaction with him that has been wonderful for us both. 

The Ministry

Yesterday, while rubbing his feet, I looked down and took a mental picture of my hands on his feet. If I stepped outside myself, the scene looked menial, like a chore. It’s not magical like rubbing your infant's feet.  But it was beautiful. And I saw Jesus, washing his disciples feet, and remembered about servanthood, and sacred moments and the God that enjoys meeting us in the menial, mundane, difficult tasks and illuminating His presence.  I received the gift of being able to worship through service while giving the gift of deep pressure and lovely smells to my son’s feet.  All this in my ministry to dry, cracked feet. 

I could never have imagined all the ways that God would reveal Himself as I travel on this spectrum road.

Lord, Thank you for the gift of mundane tasks.  You give us the opportunity to practise your Presence in these tasks over and over, allowing us the chance to see that you are everywhere, in everything, transforming mundane into sacred. Today, please open our eyes to the mundane sacred moments that we will encounter. Open our hearts to worship you as we engage.
Amen.
- Faith


Thursday, August 25, 2016

How to Help WITHOUT Having to Wash Their Feet

Image Courtesy of winnond/freedigitalphotos.net
After that, he poured water into a basin and began to wash his disciples' feet drying them with the towel that was 
wrapped around him.
"Very truly I tell you, no servant is greater than his master, nor is a messenger greater than the one who sent him.  
Now that you know these things, you will be blessed if 
you do them." 
John 13:5, 16-17 NIV

The tragedy strikes...be it a new diagnosis, a sudden illness, or worse...a death.

Or, maybe it wasn't a tragedy, maybe it was just a breakdown that someone saw at a time when you weren't expecting it, and that person says those fated words:
  • I wish I could help.
  • How can I help?
  • If only I could help...
And we say, "Oh, thank you.  I'll let you know if I think of something."

Guess what?  We NEVER think of something.  
We are too busy surviving to think of something.  
What we need is HELP that shows up when we DON'T ask.

When my daughter and I were at camp last month, our feet reached a level of "filth" that I can't express in words.  BUT, I'll try...it took me three days of showering to actually NOT see dirt in the creases on my feet.  I would wash my feet with a bar of soap and watch the muddy water roll down the drain and they were STILL dirty when I was done.  We could wear socks around the cabin and STILL have dirt on our feet (not to mention what our socks looked like) when we took them off to go to bed at night.

These were some DIRTY, DIRTY feet.  And, I imagine that's what Jesus and his disciples' feet looked like as well.  They lived in a dry, dusty climate and they walked around in sandals, right?  They walked EVERYWHERE like that!
Can you imagine what their feet looked like by the end of the day when Jesus got down on his hands and knees to wash them?
Now, here's the funny thing...my dear, sweet, adorable daughter who was working her tail off at camp had dirty, filthy feet at the end of the day and she said, "Mommy, can you rub oil on my feet?"  (This is something we typically do at night in order to help her sensory issues and anxiety.)  My loving, motherly reply?
No way!  We are not putting oil on our feet here, it would turn into mud and be disgusting!!!
That's a sweet mom, right?

But then it hit me what Jesus had done for his disciples and what he had asked us to do for one another.

Wash one another's dirty, filthy, stinky feet.  

In this month of Special Needs Parent Appreciation, I want to take a moment to talk about how others can HELP parents of children with special needs.  (And you don't even have to wash someone's feet!)  I learned some things when my daughter was diagnosed with cancer and when she had a hole in her heart repaired and when had multiple eye surgeries.  And now's the time for me to let others know...
HERE'S HOW YOU CAN HELP. 
Put together a SURVIVAL KIT.  It might be something they use for frequent clinic runs, it might be something used while IN the hospital or waiting in recovery.  Put it all together in a backpack or duffle bag.  A great survival kit includes:
  • Bottles of water
  • Gift cards for nearby coffee shops, gas stations, restaurants
  • A cheap fleece blanket easily found at a local store
  • A deck of cards or sleeve of dice with instructions for some games
  • An iTunes gift card in case they need to download something for entertainment
  • Granola bars, fruit snacks...or other non-perishables
  • Crossword puzzles, Sudoku etc.
  • Warm Socks or slippers
  • Flip Flops
  • A travel pillow
  • Bubbles (sometimes questionable, but they worked great for bringing a smile to my daughter's face)
  • Gum and breath mints
  • Small notepad and pens for taking notes when meeting with doctors and specialists
  • Travel sized toiletries~deodorant, shampoo, lotion, toothpaste, mouthwash
(In case you need to get a survival kit together quickly and are afraid you just can't coordinate it, you can always visit the Snappin' Ministries website to request a TLC Basket be sent to a family with special needs!)

Or, do some of the following things:
Water their flowers/garden
Shovel their snow or mow their lawn 
Drop by with some staple foods like bread, cheese, canned items, breakfast cereals, soups
Offer to pick their kids up from school or take them to school, church, or other activities so the parents don't necessarily need to make "one more trip" somewhere
There are many "little" things that come up every day which are small, and we don't ask for help because EVERYONE has to do them...yet, when our daughter was sick with cancer or recuperating from a surgery and we'd look out the window and realize that someone had shoveled the foot of snow that had fallen on our driveway???  Oh my goodness, that was like God shining directly down on us and saying,
"See, I have not left you.  You are not alone."
You can be the answer to someone's prayer just by "showing up" without being asked.

God came down from his throne in Heaven and washed some dirty, filthy, stinky feet...I mean...that is something I couldn't even bring myself to do for my own DAUGHTER!  And then, he told us that we would be blessed if we did the likewise.

This is our BATTLECRY today...Go forth and look for those who are weary, depleted and needing a little encouragement today and WASH THEIR FEET (without actually having to wash their feet).

Pray:  Heavenly Father, thank you for moments of clarity when we realize just how desperately the world around us needs ENCOURAGEMENT.  Open our eyes, Lord, to see the hurting...then help us to see how WE can be the HANDS and FEET of Jesus by serving them.  Help us to not just have GOOD INTENTIONS...help us to turn those intentions into ACTION.  Help us to bring your Kingdom down to earth and remind the families of people with special needs that you have not FORSAKEN them.  Amen.

~ Tammie Hefty







Enter today's drawing as we continue to celebrate Special Needs Parents Appreciation MonthToday's prize is another small pampering package with a retail value of $12.  Simply leave a comment below and also "Like" our Facebook page


Wednesday, August 24, 2016

1 Corinthians 13: The Autism Parent's Edition

Photo Credit, David Niblack, Imagebase.net
Love is patient, love is kind. 
It does not envy, it does not boast, it is not proud. 
It does not dishonor others, it is not self-seeking, 
it is not easily angered, it keeps no record of wrongs. 
Love does not delight in evil but rejoices with the truth. 
It always protects, always trusts, always hopes, always perseveres. 
Love never fails.
1 Corinthians 13:4-8a (NIV)
I have regularly made the reading of 1 Corinthians 13 part of a spiritual self-check. I read the passage, often out loud, and insert my name in place of the word "love." It is a humbling and convicting exercise. Recent interactions with my daughter have brought me back to this place - the place where I realize that to love her well, I have to love her in ways she understands and needs, not what suits me best. It has made me look at this passage in a new way:
Love is patient. It answers the question about what's coming next for what seems like the thousandth time in the past two hours, despite having visual calendars and daily agendas available for her to look at anytime. It deals with the child who gets out of bed over and over again before finding sleep, trying to find a way to calm her anxiety, praying with her for the peace and rest that her mind and body need.
Love is kind. It explains for the umpteenth time, in a calm and quiet voice, why your child needs a place to go and chill out when group situations become overwhelming, why your child can't eat certain foods, and why your child refuses to keep her socks and shoes on. It resists all urges to act in ways that are unbecoming and would cause an embarrassing scene.
Love does not envy, it does not boast, it is not proud. It rejoices with other parents when they celebrate their child's milestones while their own children are far behind, and it resists the urge to accost everyone it meets with tales of the latest victory in occupational therapy or physical therapy or speech therapy or ABA or . . . .
It does not dishonor others, it is not self-seeking . . . . Love treats the stranger who stares at your child's public meltdown with respect and an attempt at humor instead of giving in to the immediate reaction that bubbles up - sarcasm, or worse. Love looks to see where others might be struggling and need a quick text or email of encouragement, even on the rough days, determined to remember that parents of kids with autism aren't the only ones who struggle.
. . . it is not easily angered, it keeps no record of wrongs. It swallows frustration and hurt over and over again, as our children struggle to make themselves understood and communicate their needs, often in ways that hurt deeply. It finds ways to set the hurt aside, putting your child's needs ahead of your own, making sure that your child feels your love and acceptance instead of residual pain from behavior they are still learning to control. (All this while trying to teach them that their behavior has consequences and does cause problems for other people.)
Love does not delight in evil but rejoices in the truth. Love rejoices in hearing about families who are loving their children well, getting them the help they need, even if it is different than the choices I have made for my child. Love does not smile smugly at the misfortune of those who have made unkind comments about my child or my parenting, but reaches out with Christ's strength to see what I can do to help.
It always protects, always trusts, always hopes, always perseveres. Love works hard to look on the bright side, even when another diagnosis complicates things, a food allergy restricts the diet further, and sleep deprivation requires caffeine consumption at dangerous levels. Love continues to research, fight with insurance companies for coverage, and work daily with their child to help her reach her full potential, whatever that may be.
Love never fails. Love trusts God to get through each day and to give the strength needed to do whatever needs to be done that day, even while praying for a nap, drinking lots of caffeine, and eating dark chocolate. And love does this 24 hours a day, 7 days a week, 365 days a year, because most parents of kids with autism don't get respite - or not nearly enough.
Pray: Father, please help me to continue to stay the course, even on the days that I'm exhausted and think I can't possibly do one more thing. Please help me to be more like Christ each day so I can say to my children, like Paul, "Follow me, as I follow Christ." Give us your peace and patience as we navigate the difficulties of this life, and help us to learn to love one another with the love that only you can give us for each other. As we are filled with more of your love, show us how to love others and be your hands and feet in a world that is hurting. Amen.

Tuesday, August 23, 2016

Shine Your Light

“You are the light of the world.
 A city that is set on a hill cannot be hidden.
 Nor do they light a lamp and put it under a basket,
 but on a lamp stand, and it gives light to all who are in the house.”

‭‭Matthew ‭5:14-15‬ ‭NKJV‬‬
I often talk about my son shining his light. 

I am not so sure a six foot tall teenage boy that is significantly impacted by his Autism diagnosis even needs a lamp stand. He just shines, often in ways that I didn't even understand were possible.

He has shone a lot, especially since we moved to Arkansas and into a new school system. 

Shining, being the light.

It's not an easy task, and it's especially difficult as parents of a child who may not always be able to say "put me on that lamp stand and let me shine".

To say our arrival at his new school was difficult would be a understatement. It would equally be understating the facts to simply say they "took care" of the situations brought to light by his presence.

I did little to nothing, I didn't have to. His light shone so brightly that he exposed everything that was "tucked away, out of sight and out of mind". He exposed it for all the world to see, and changes were made.

It wasn't easy on any of us, especially my son.

But I had prayed, and I knew God had put us where we were supposed to be. I didn't know why we were where we were but I had to trust that putting my son out there, letting him shine in this place, was in fact what God wanted us to do.

While there were serious difficulties we were encountering, there were also many people willing to step up. They not only acknowledged "we need to change", but they actually did the work to change. They worked hard and tirelessly to put in place what my child and others needed. This was an enormous benefit for all students, and staff.

The light of my son, of our children, cannot be hidden. 

Putting our children out into the world can be one of the hardest most heart breaking things that we have to do. It's in our human nature to guard and protect them.

We have to remember...

"They are the light of the world..."

We are entrusted with these little human beings, and tasked with growing them into the incredible lights that God created them to be. 

Sometimes we don't know or understand the what and the why, and sometimes we have to trust the where. But then there are the times we get to see.  This is when we are reminded of the fact that our children are created for a purpose, even though we may never grasp the enormity of it all.

So we do not light a lamp and hide it under a basket. We place it carefully on a stand, even if it is six feet tall, and we guard and protect it the best we can while it shines out into the world.  
As for the times when our hearts may break as they venture out into the world, we remember the words in Matthew 5: 14-15...

“You are the light of the world.
 A city that is set on a hill cannot be hidden.
 Nor do they light a lamp and put it under a basket,
 but on a lamp stand, and it gives light to all who are in the house.”

Heavenly Father I pray for those mothers and fathers whose hearts break as they help their children step out into the world and spread light into the darkness. Father comfort and strengthen them as they stand guard at the lamp stands where they have carefully and obediently placed their children... and Father I pray for those children, I pray that You protect and comfort them as they travel a frequently difficult and sometimes dangerous path. God I know that You are with them, and that You will never leave them...and I pray that each and every parent holds that knowledge and is comforted. God we are thankful for this journey we are on and the opportunities we are given to see Your light come shining through Your incredible creations that You have entrusted to us. In Jesus name. Amen.

~Beth 





Enter today's drawing as we continue to celebrate Special Needs Parents Appreciation MonthToday's prize is a the book Anxious: Choosing Faith In a World of Worry, by Amy Simpson.  The book has a retail value of $12.  Simply leave a comment below and also "Like" our Facebook page

Monday, August 22, 2016

Healed on the Sabbath



Luke 13:10-17
10 Now he was teaching in one of the synagogues on the sabbath. 11 And there was a woman who had had a spirit of infirmity for eighteen years; she was bent over and could not fully straighten herself. 12 And when Jesus saw her, he called her and said to her, “Woman, you are freed from your infirmity.” 13 And he laid his hands upon her, and immediately she was made straight, and she praised God. 14 But the ruler of the synagogue, indignant because Jesus had healed on the sabbath, said to the people, “There are six days on which work ought to be done; come on those days and be healed, and not on the sabbath day.” 15 Then the Lord answered him, “You hypocrites! Does not each of you on the sabbath untie his ox or his ass from the manger, and lead it away to water it?16 And ought not this woman, a daughter of Abraham whom Satan bound for eighteen years, be loosed from this bond on the sabbath day?”17 As he said this, all his adversaries were put to shame; and all the people rejoiced at all the glorious things that were done by him. [1]

Part of my son’s diagnostic story is that I was once told he would never read, write, or speak. When I report this at IEP meetings, educators often have one of two reactions. Often they smirk and comment on the fallacy of shortsighted clinicians who shut doors too quickly. Others smile sympathetically in realization of just how much work it must have taken to get where we are today.

Today he reads. He writes. He speaks.

For as long as we have been doing it now, it still never gets old to hear him read aloud, or better still to hear him read something that he himself has written. I think this is a small gift I receive for all the tough nights along the way. But nothing – absolutely nothing – thrills my soul like hearing him read God’s Word during our Sunday worship services.



Our church customarily invites Noah to be a part of our worship in this way. This week his text seemed particularly poignant.  Luke records an encounter on the Sabbath Day between Jesus and a woman with a long-term illness. While the thrust of the passage is Jesus’ defense of healing this woman on the Sabbath, it was other wording in this passage that caught my ear when read in my son’s voice.

“Woman, you are freed from your infirmity.”

Other interpretations of the Greek ἀπολέλυσαι (apolelysai) read “removed,” instead of healed or freed. In the place of infirmity of illness, a near definition of ἀσθενείας (astheneias) is “weakness” or “limitation.” This could easily read “you are removed from your limitation.”

You are removed from your limitation. And in that there is healing.

I feel that we are removed from our limitations each time our church seeks to include Noah in leading
our service. Because the truth of it is, his reading isn’t polished at all. His fluency is so choppy that you can’t really follow along. His speech impediment makes understanding him difficult as well. Our limitations – disability, illness, weaknesses – are still present. But for just a little while, he is removed from them.

And we are healed on the Sabbath.


Dear Father,
            Thank you for placing my family in a loving church that sees past my son’s limitations. I thank you for their patience and loving-kindness as he struggles to participate in the only ways open to him. I lift up other families that do not know such comfort Lord. Raise up other places of worship to truly by the Body of Christ to families that need healing. Amen.





[1] The Revised Standard Version (Oak Harbor, WA: Logos Research Systems, Inc., 1971), Lk 13:10–17.