Saturday, March 21, 2015

"Are You Serious?" Awards - Volume XLV: IT'S A TIE THIS WEEK!

I want to start out telling you NOT to get discouraged after reading about this week's award winners.  They are BAD!  But YOU are stronger than the nastiness these "winners" are wielding.  Let these situations empower and activate you.  Simply by virtue of the fact that you are reading this blog tells me that YOU were uniquely made for such a time as this, to be a voice for those drowned out by the rest of the world.

FIRST

So, imagine giving birth to a beautiful baby boy.  Joy abounds as he is added to your family.  Grandma and Grandpa are euphorically called with the news right after he enters the world.  Big sister comes to meet him.  This is a pinnacle experience!

The day after  his birth, you find your family taking a precipitous plunge from that height as the doctor enters your hospital room with heartbreaking news, "Well, there's no easy way to say it.  He has hemophilia."

Over the next 15 years in his battle with this chronic bleeding disorder, he will have over 2,000 IV needles inserted, administering the life-saving clotting factor that his body will not produce.  The cost of his treatment runs in the neighborhood of $200,000 per year if all is going well.  If it is a bad year, it will cost more because there will be hospitalizations, procedures, extra infusions, and maybe even a wheelchair thrown in for a time.

Then, in one short Sunday episode of a TV series, "Secrets and Lies," there is this...

Listen to the video excerpt for yourself here:  http://youtu.be/710hBFKeNFk
Are You SERIOUS?!

Words failed me at a time like this.  The child you were imagining is MY child.  And the insult leveled with such abhorrent misinformation for the sake of a TV plot line not only demeans this magnificent young man I am raising, but also many, many other awesome men, boys, babies and their fabulous families around the country.

Thankfully, national organizations advocating for our families wasted no time in condemning ABC and the show's writers for spreading such harmful, insulting ignorance during - of all things - Hemophilia Awareness Month.  Both the National Hemophilia Foundation and  the Hemophilia Federation of America issued scathing press releases, asking for a public apology.  Bleed Free, Inc, a patient-driven advocacy group established a petition for people to sign, requesting that ABC make a public apology to both the hemophilia community and the viewers of "Secrets and Lies."

Patients engaged, one putting together a list of all of the show's sponsors for complaints to be lodged.

Patient assembled list of sponsors
Mother and hemophilia community advocate, Brendan Hayes, wrote an encouraging, empowering post applauding the activation of patients around this issue.

And despite all this, the community still awaits a response.  Perhaps you would be willing to join us in contacting ABC/Disney's president, Ben Sherwood about this insulting ignorance.

Meanwhile, Ben Sherwood and Barbie Kligman, the show's executive producer (@Barbielk on Twitter) really ought to spend some time educating  themselves on the basic facts of hemophilia.  It's too bad they never cared enough to do that before they inflicted so much harm on people with this disorder and their families, to the point that there are now kids afraid to go to school because of their LIES.

Since it IS still Hemophilia Awareness Month, YOU should also learn the facts!  Hemophilia Federation of America has a great page consolidating facts and images.  CLICK HERE to learn more! 


SECOND 

Not to be outdone by Hollywood's rude ignorance, a cruel, rude neighbor more overtly insulted a young lady in Miamisburg, OH.  After losing her leg in an accident, Ashley Brady fought to get a handicapped parking space in front of her apartment.  Unfortunately, once she was finally granted the spot, someone without a hang tag or disabled plates repeatedly parked in the space.  Given the fact that she had fallen in the past, Brady left an assertive note asking the person taking the space to please stop parking there.

Photo image courtesy of trendobjects via 123rf.com
 What she got in response was this STUNNING trash left on her windshield:
"Hey handicap! First, never place your hands on my car again! Second, honey you ain't the only one with 'struggles.' You want pity go to a one leg support group! You messed with the wrong one! I don't care what your note said shove it, but you touch my car again I will file a report, I am not playing! I let the office know the cry baby one leg touches my property I will cause trouble so go cry your struggles to someone who cares cause I'm walking away with both mine! -[expletive]."*
 Are You SERIOUS?!

Seeing this sort of depravity documented in writing is upsetting.  We don't want to believe that people can be this mean and ruthless over a parking spot.  Yet, when you couple stories like this with more stories like the one about a woman with a suspended license and a stolen, expired placard being charged with aggravated battery in Greenfield, WI for knocking an elderly woman to the ground over a parking space, you see that the nastiness is more pervasive.

Thankfully, in the Brady story, complaints were filed with both the police department and her apartment manager.  Perhaps this will keep this brave young woman safe as well as give this adult bully a second thought about how she treats others.


3 comments:

  1. Due to the politically charged world we now live in I thought I had seen about all of the stupidity that there was to see. However, when I first saw the story about the tv show I realized that utter stupidity knows no limits. As someone that admires your families togetherness in the midst of all the chaos I was deeply troubled by what they did. Please know that not everybody is as ignorant as the people that put out that show. Please further know that nobody will harm your family on my watch.

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    1. Roy, you are a friend to the end! You brought tears to my eyes with your comment.

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