but the stupid plow right on and then, of course, have to pay the price."
I am a proactive parent. For the past 14 years plus, I have learned to know my children, what is "normal" for them, and what the best course of treatment is for them. I wasn't born with this skill. I was taught by a terrific nurse coordinator when our son was diagnosed with severe hemophilia at birth.
For those who don't know the world of bleeding disorders, this illness, while chronic, can also be critical. Therefore, parents are taught early on how to conduct triage and assessment on their child. Over the years we learn how to diagnose internal bleeding and how serious that bleeding may be.
That being said, critical thinking skills become a frequent byproduct of this training. Parents like me learn to get out ahead of a situation or how to avert a crisis.
If this is true of an average, old mom like me, then IS IT TOO MUCH TO EXPECT THIS FROM OUR MEDICAL PROFESSIONALS?
Let me tell you what I'm talking about. About a week-and-half ago, I posed a question in a private chat group for those raising children with hemophilia. I asked, "Given the nature of Ebola, has anyone discussed with their hematologist a protocol for treating someone with a bleeding disorder on the outside chance that they might contract this virus?" I was afraid that other participants would think I was nuts. I'm not an alarmist. I merely want to have a plan of attack in place, should a serious illness confront my child. I was SHOCKED to see what a great interest there was amongst my other parents/patients. As many as 43 comments were left on this post, with 25 more interested in the answer. Sadly, a few noted that they had spoken to their doctors and were either dismissed, or their professional had no plan.
I also have a daughter with asthma and severe allergies. As we know, there is an outbreak of EV-D68 currently spreading in this country. When I spoke with an internist about it, they told me there is no vaccine for it, and merely shrugged it off. I have heard nothing from my daughter's specialists on her care regarding this serious virus. The only thing of use to us? The above infographic from the CDC. I don't know about you, but our family already does all of those things as a matter of habit.
My point is this, as frequent medical consumers, are we not reasonable to expect our medical professionals to at least be THINKING about these prevailing issues? Isn't part of coordinated patient care helping the patient to be proactive in maintaining their own health? Yet, that is exactly what we are not seeing as we jump with both feet into the cold and flu season.
At the very least, I would hope that our doctors could simply talk out a potential plan of treatment without being dismissive. We love our kids, and it's normal for us to have concerns. Our kids do best when we all work as a team.
What are your thoughts? Do you have a plan for your child(ren) when it comes to serious communicable illnesses? Have you pressed your doctor for a treatment plan should your vulnerable child be a victim of the flu or other circulating viruses? Do you feel comfortable with the preventative care your specialist has recommended for your child? I am not suggesting worrying yourself needlessly. (See my post from October 3, 2014) There are countless things in this world we cannot control. However, prudence should be a hallmark of how we operate as parents. God's word makes it clear -- When we fail to plan, we're planning to fail.
~ Barb Dittrich