While we don't want to scare our children unnecessarily, may I mention that there are terrific FREE resources on YouTube from authorities that are great teaching tools like this...
From experts like Mayo Clinic and Web MD to diagnosis specific groups like The Juvenile Arthritis Foundation and The National Autism Association, parents can find useful videos on everything from social skills to how to handle a seizure via YouTube.
Remember that our kids live in the era of technology. Video tools like this can convey serious lessons that our kids simply do not absorb by listening to their parents or the doctor. Appealing to both their visual and auditory senses at the same time, this type of tool is more likely to help children retain important instructions.
Sometimes, in learning to manage their own diagnoses, our children let things get worse before they get better. When our son was first learning to administer his own IV's of clotting factor, it would sometimes take a painful bleed for him to understand the importance of not missing a scheduled infusion. These times can be extremely stressful for us as parents because we realize that critical situations don't always afford us a do-over. The best we can do is to pray for God's protection over our precious kids and continue to use every tool available to teach them the serious nature of their own personal medical care.
~ Barb Dittrich