Thursday, July 31, 2014

We've Come a Long Way, Baby!

"Who am I, Sovereign Lord, and what is my family, that you have brought me this far?"
~ 2 Samuel 7:18, NIV ~

It seems like yesterday that I had my first nervous in-service for our son at the nursery school 3 blocks away from our home.  

I wanted the floor to open up and swallow me when our treatment center nurse found it necessary to tell the teaching staff that my son's clotting factor was derived from Chinese hamster ovaries.  From that school year forward I did the school staff training on my own.

This year's preliminary training is in place with the school nursing staff, and a larger one will follow next month with instructors and the school's emergency response team.  I should be nervous.  It will be his first year of high school.  Instead, I seem to have a peace that surpasses all understanding.

It isn't the that we are trouble-free.  My son has had a summer of prolific, unexplained nosebleeds again.  He likely needs some oral surgery that I have been putting off for lack of funds.  We are in a precarious place with our treatment center right now over an issue that breached our trust.

Even so, I can't help but reflect during this time of transition on how far God has brought this incredible boy over the years.  

  • He has recovered from a frightening hospitalization at age 5 for internal bleeding in his GI tract that left him physically and emotionally scarred for years.  
  • He no longer fears going to the ENT doctor, despite multiple nasal cauterizations for relentless nosebleeds over the years. 
  • He wants to see his dental specialist, even though he has gone through an oral procedure under general anesthesia once previously because the work was so involved and the mouth so vascular. 
  • He has learned to get around on crutches and in a wheelchair after facing a serious ileopsoas (hip joint) bleed and a foot injury. 
  • Despite SO much missed school over the years, he has remained a great student, leaving intermediate school as an honors student. 
  • He has gone to our state Capitol and advocated for people with bleeding disorders with influential lawmakers. 
  • He has developed his own sense of what is best for his own physical needs, managing his bleeding disorder and other challenges. 
  • And he has gone from needing to be restrained for IVs (a by-product of his PTSD), to self-infusing with assistance.
Sure, I still fight the boy on remembering to wear his bicycle helmet and medical alert bracelet.  It usually ends up in a good-hearted joke, "Don't come crying to me if you're killed!"

Even so, it is easy to feel confident moving into this new transition with our son when you see how far God has brought him, brought ALL of us.

There have been times when it seemed the difficulties of hemophilia might never, ever end.  I would hold him and we would cry together over this beastly bleeding disorder.

While he still lives with the hurdles of hemophilia, he sees hope beyond his illness.  God has strengthened and guided him through some of the most difficult obstacles.  Why shouldn't we feel confident that He will do the same in the future?

What a blessing to face such a big school transition confident that God has his back!

PRAY:  Father, as we walk into transitions this new school year, help us to remember all that You have brought us through in the past.  Guide us as we walk in confidence trusting You.

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